Huntington’s Disease (HD) is far more than a genetic diagnosis—it is a profound human tragedy
that reshapes lives across generations, affecting patients, families, and caregivers emotionally,
physically, and economically. Despite advances in genetic science, HD remains underrepresented in medical education, where future physicians often learn about its biology but not its lived realities. This article advocates for a transformation in medical training to better prepare clinicians to understand, empathize with, and support those touched by HD, using my family’s experience as a lens into this overlooked crisis.
